NKFF Reaches Out to Family in Need
“He never stopped smiling,” says Lisa (Alice) Seguid, of her son, Shawn, 30, who recently succumbed to Pulmonary Artery Sarcoma, a very rare and aggressive tumor, after being diagnosed 17 months prior. Although Shawn lived in Ulster County, New York, three hours from Long Island Jewish Medical Center, he was brought to the Northwell Health hospital to be under the care of Dr. Robert Maki, a medical oncologist specializing in sarcomas, which represent less than 1 percent of all cancer.
Unfortunately, Shawn declined quickly upon his arrival at LIJ, but not before he made a tremendous impression on hospital staff, who wanted to help Shawn and his loving family in any way they could. Nancy’s Friends volunteers visited often, bringing the NKFF Video Game Console to his room. “When he was feeling okay, he played for a few hours,” his mother says. “It brought him joy.”
The Seguid family did not want to leave Shawn’s side. Recognizing the difficulties the family were facing living far from LIJ, the Nancy Klauber Forest Foundation was able to ease some of their concerns by paying for their hotel rooms and food so that they could stay with Shawn as much as possible. NKFF also funded Shawn’s ambulance ride to the hospital from the Seguids’ home.
“From the first moment to this moment, the NKF Foundation exemplifies exactly what it set out to do,” says Denice Romero, LIJ’s director of Volunteer Services. “Each day is a testament to the foundation’s mission.”